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July 22, 2024

When Caregiver Roles Detour Your Career Goals

When Caregiver Roles Detour Your Career Goals

What if you suddenly found yourself in a role you never imagined, caring for a loved one with Alzheimer's? Join me as I share my unexpected journey from an accomplished career in engineering, law, and activism to becoming a full-time caregiver for my mother, Zetty. Despite my professional background, caregiving was never part of my life plan.

Through humor and raw honesty, I share the emotional and physical weight of this unplanned responsibility, debunking the myth that caregiving is a natural fit for  me. In this heartfelt episode, I reflect on the shifts in my life following Zetty's Alzheimer's diagnosis. From her love of travel and social justice to my own dreams of living abroad and an interrupted proposal, my story underscores how caregiving profoundly alters life plans.

I explore the concept of choice, showing how embracing caregiving as a conscious decision can help mitigate regret and confusion.

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Where fellow caregivers can find exclusive content and support

#CaregivingJourney 
#AlzheimersAwareness
#EndALZ
#CareerTransition
#CaregivngComedy
#CaregivingChallenges 
#FamilyCaregiver 
#CaregivingLife 
#CaregiverReflection 
 

"Alzheimer's is heavy but we ain't gotta be!"
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Chapters

00:00 - Caregiving and Unexpected Life Changes

15:36 - Unexpected Life Changes and Caregiving Journeys

35:03 - Embracing Caregiving as a Choice

Transcript
WEBVTT

00:00:00.360 --> 00:00:10.086
Parenting Up family if one more person says Jay, I'm not like you, I don't know how to be a caregiver, you were born to do this.

00:00:10.086 --> 00:00:17.545
You're so good with Zeddy, you love your mama, and you just slide into.

00:00:17.545 --> 00:00:24.114
What to say, how to hug on her, how to kiss her, what to ask the doctors?

00:00:24.114 --> 00:00:28.451
You must have been waiting to be her caregiver.

00:00:28.451 --> 00:00:29.722
Did you want to be a nurse?

00:00:29.722 --> 00:00:31.486
Did you want to be a doctor?

00:00:31.486 --> 00:00:33.350
You have siblings.

00:00:33.350 --> 00:00:36.542
I bet you were the world's best babysitter.

00:00:36.542 --> 00:00:41.246
Cut that shit right now, y'all.

00:00:41.246 --> 00:00:42.387
I don't want to do this.

00:00:42.387 --> 00:00:45.192
I don't want to do it no day.

00:00:45.192 --> 00:00:49.095
No, how, no, not never.

00:00:49.095 --> 00:00:50.881
Okay, not never.

00:00:50.881 --> 00:00:58.982
Just because I do it and I put my whole heart into it Don't mean I like it, don't mean I want to do it and I'm about to set the whole record.

00:00:58.982 --> 00:01:04.450
Come on, come on.

00:01:04.450 --> 00:01:11.519
I need y'all to lean in and listen and look and get ready to ask your questions right now.

00:01:11.519 --> 00:01:19.206
Fold your arms, cause obviously somebody had been gotten misunderstood on J Smiles and this caregiving.

00:01:22.540 --> 00:01:31.753
Parenting up caregiving adventures with comedian Dave Smiles is the intense journey of unexpectedly being fully responsible for my mama.

00:01:31.753 --> 00:01:42.049
For over a decade I've been chipping away at the unknown, advocating for her and pushing Alzheimer's awareness on anyone and anything with a heartbeat.

00:01:42.049 --> 00:01:48.465
Spoiler alert I started comedy because this shit is so heavy, so be ready for the jokes.

00:01:48.465 --> 00:01:57.069
Caregiver newbies, ogs and village members just willing to prop up a caregiver, you are in the right place.

00:01:57.069 --> 00:02:02.349
Hi, this is Zeddy.

00:02:02.349 --> 00:02:09.014
I hope you enjoy my daughter's podcast, is that okay?

00:02:17.939 --> 00:02:21.371
Today's supporter shout-out comes from Choir Pump.

00:02:21.371 --> 00:02:24.543
That's, first of all.

00:02:24.543 --> 00:02:31.686
That's an amazing, amazing handle, so validating.

00:02:31.686 --> 00:02:37.028
I finally feel like I have a friend who understands what's going on in my life.

00:02:37.028 --> 00:02:40.569
I'm only six months in with my caregiving.

00:02:40.569 --> 00:02:46.711
My mom has a brain tumor, so it's similar to what Jay is dealing, dealt with.

00:02:46.711 --> 00:02:50.385
I'm going to ask my support system to listen.

00:02:50.385 --> 00:02:52.669
Thank you so much.

00:02:52.669 --> 00:03:05.973
Purple heart emoji and Choir Punk asked her support or him or her or they, I don't know.

00:03:05.973 --> 00:03:17.742
Okay, the fact that it was suggested to others also means the world.

00:03:17.742 --> 00:03:28.961
If you want to be featured on our supporter shout out, please leave a review on Apple Podcasts that's my preference or IG, youtube, all the places Y'all know where.

00:03:28.961 --> 00:03:32.669
It is okay, but the point is, please review.

00:03:32.669 --> 00:03:35.963
It matters A bunch.

00:03:35.963 --> 00:03:41.312
I love you, zeddy loves you A lot.

00:03:41.312 --> 00:03:43.155
Go vote.

00:03:43.155 --> 00:03:59.188
When caregiver roles detour your career goals, listen and listen.

00:03:59.650 --> 00:04:10.292
Well, nobody plans to be a caregiver, and by nobody I mean me caregiver, and by nobody I mean me, I am nobody.

00:04:10.292 --> 00:04:12.455
I had such a plan.

00:04:12.455 --> 00:04:13.681
Y'all ain't gonna believe this.

00:04:13.681 --> 00:04:15.645
I mean, I'm talking about I plan plan.

00:04:15.645 --> 00:04:18.351
I made list, my list had list.

00:04:18.351 --> 00:04:19.161
Do you hear what I'm saying?

00:04:19.161 --> 00:04:23.648
My mentors had mentees, my advisors advisees.

00:04:23.648 --> 00:04:27.654
I had a whole board of directors, call me Inc.

00:04:28.439 --> 00:04:30.064
I used to worry the shit out of them.

00:04:30.064 --> 00:04:31.507
Am I on the right track?

00:04:31.507 --> 00:04:35.983
Am I going to get where I need to be by 30, by 31.5?

00:04:35.983 --> 00:04:37.807
I was not a game.

00:04:37.807 --> 00:04:44.908
I didn't even want to have a plant, because a plant means you had to go take care of it.

00:04:44.908 --> 00:04:48.625
I would get a goldfish because they were supposed to die after about a month.

00:04:48.625 --> 00:04:54.850
So if I came home after a couple of weeks and the goldfish was dead, I didn't feel that bad because they weren't supposed to live that long.

00:04:54.850 --> 00:04:55.461
Do you understand?

00:04:55.461 --> 00:05:00.206
I'm not supposed to be responsible for nothing alive like nothing.

00:05:00.206 --> 00:05:08.776
Nothing alive Like the mold on the food from my to-go carry out.

00:05:08.776 --> 00:05:12.529
Maybe I was responsible for the mold I was growing.

00:05:12.529 --> 00:05:13.622
That's how much.

00:05:13.622 --> 00:05:17.771
I might not be responsible for nothing else inside my apartment but me.

00:05:17.771 --> 00:05:28.180
Anyway, this caregiving thing showed up unwanted and unwarranted.

00:05:28.180 --> 00:05:37.634
I remember thinking what the hell I do to all of a sudden have all of this?

00:05:37.634 --> 00:05:41.588
But my mama needed me.

00:05:41.588 --> 00:05:43.293
Actually, let me back up.

00:05:43.293 --> 00:05:50.901
My first entree into caregiving was with my mama's mama, glo.

00:05:50.901 --> 00:05:54.641
Foxy Glo, miss Jackson, if you're nasty, but anyway.

00:05:54.641 --> 00:06:05.230
That's my grandmama from New Orleans and she called herself Foxy Glo because anyway she was hot, she had lung cancer, but I was in my 30s.

00:06:05.230 --> 00:06:11.209
I came home to help the family, but I wasn't about to give up my life for it.

00:06:11.209 --> 00:06:26.744
I'm going to just help y'all While grandmama, affectionately known as Big Mama, for anybody who's from the deep south, from anywhere, if you're black in the whole diaspora, big mama is the matriarch, she's in charge.

00:06:26.744 --> 00:06:27.807
She tells everybody what to do.

00:06:27.807 --> 00:06:36.232
Whether you were born to her or not, if you marry into the family, the big mama or the mama is in charge of everybody.

00:06:36.232 --> 00:06:37.605
So that was my big mama.

00:06:37.605 --> 00:06:44.216
But I was just going to come home to help out with her and then go about my merry way.

00:06:44.216 --> 00:06:45.060
And what about my merry way?

00:06:45.060 --> 00:06:47.023
And what was my merry way?

00:06:47.023 --> 00:06:48.685
So happy, you asked.

00:06:50.149 --> 00:06:51.831
Mechanical engineer from Ford.

00:06:51.831 --> 00:06:53.435
From Howard University.

00:06:53.435 --> 00:06:54.764
I work for Ford Motor Company.

00:06:54.764 --> 00:06:56.569
Product design engineering.

00:06:56.569 --> 00:06:57.230
From Stanford.

00:06:57.230 --> 00:07:03.889
I work for Gillette Law degree from Cumberland, I work for the Ford and work for the Cochran firm.

00:07:05.250 --> 00:07:39.391
I spent over a decade working in each of those fields working in Africa and Italy and had created this delicious network of government, private and creative sectors between Southern the Southern part of Africa, not South Africa the Southern part of Africa, italy and Spain, and then the United States, and I was moving between those three continents, shaking and baking, and making it do.

00:07:39.391 --> 00:08:10.276
I'm originally from Montgomery, alabama, so activism is at my core, so I was creating products that would help young, intellectually stimulated African girls who didn't have the financial resources Get where I'm going with this, so I'm putting together all my passions and my love for travel.

00:08:10.276 --> 00:08:15.343
I've never believed that I belong to any one city or any one country.

00:08:15.343 --> 00:08:17.947
Jay smiles as a global citizen.

00:08:17.947 --> 00:08:21.194
Baby, if you got a son, give him my number.

00:08:21.194 --> 00:08:22.021
You feel what I'm saying.

00:08:22.021 --> 00:08:26.802
I belong to these people, to these streets, to these airways.

00:08:26.802 --> 00:08:35.346
Okay, if I'm a lover, not a fighter, I'm going to eat your food, I want to drink your drink and I want to hug and kiss your babies.

00:08:35.346 --> 00:08:38.653
I can live anywhere and I have.

00:08:39.841 --> 00:08:46.693
I had five passports before I was 30, all double stitched in the middle with the extra pages.

00:08:46.693 --> 00:08:47.662
That's me.

00:08:47.662 --> 00:08:48.744
I'm your girl.

00:08:48.744 --> 00:08:49.645
Oh my God.

00:08:49.645 --> 00:08:52.472
Such a good life, such a good life, such a good life.

00:08:52.472 --> 00:09:02.201
That's what I was doing and that's what I was planning on doing until I had no more breath in this body.

00:09:02.201 --> 00:09:07.472
There wasn't room for no man who needed me to come back to his house.

00:09:07.472 --> 00:09:14.298
Every guy I dated knew, baby, you're going to have to come visit me in Botswana or Bosnia.

00:09:14.298 --> 00:09:24.054
Okay, if you needed me to stay in Birmingham, alabama, we needed to make this be our last night together.

00:09:24.054 --> 00:09:28.451
Let's just kiss and say goodbye.

00:09:33.120 --> 00:09:48.356
So, caregivers, imagine my surprise when my father dies and my daddy dying literally just made my mama have Alzheimer's.

00:09:48.356 --> 00:09:49.903
I didn't even know that shit could happen.

00:09:49.903 --> 00:09:58.903
It still baffles me 12 years later that because somebody dies, now you got dementia.

00:09:58.903 --> 00:10:01.591
I mean because I saw it with my own eyes.

00:10:01.591 --> 00:10:05.326
I believe it, but other than that, it's kind of like the sun rising every day.

00:10:05.326 --> 00:10:07.149
I still don't understand it.

00:10:07.149 --> 00:10:09.293
I just have seen it happen so many times.

00:10:09.293 --> 00:10:13.808
I believe it to be true, but it's stupid, like racism.

00:10:13.808 --> 00:10:18.241
Racism is stupid, but it happens, and I've seen it and I've experienced it.

00:10:18.241 --> 00:10:20.024
Like sexism, so it's true.

00:10:20.024 --> 00:10:28.375
So now, all of a sudden, I'm like but what about this life that I've worked really hard?

00:10:28.375 --> 00:10:32.169
Do you know how hard it was to stay not pregnant?

00:10:32.169 --> 00:10:33.121
I'm telling you.

00:10:33.121 --> 00:10:33.764
Did I tell y'all?

00:10:33.784 --> 00:10:34.388
I went to Howard.

00:10:34.388 --> 00:10:36.206
We never lost the party.

00:10:36.206 --> 00:10:40.707
We in charge of all homecomings, we are the reason why homecomings matter.

00:10:40.707 --> 00:10:42.264
Okay, you heard about Drake.

00:10:42.264 --> 00:10:43.268
Y'all know Drake, the rapper.

00:10:43.268 --> 00:10:47.207
I don't care where you live, he wears our shirts in his videos.

00:10:47.207 --> 00:10:48.886
He don't wear nobody else's shirts.

00:10:48.886 --> 00:10:51.687
We made the party baby.

00:10:51.879 --> 00:11:00.187
Anyway, I've been to every continent, every one, not six except Antarctica, because they don't count.

00:11:00.187 --> 00:11:04.090
A lot of people say that I went to all of them except Antarctica, because it doesn't count.

00:11:04.090 --> 00:11:04.982
Why doesn't it count?

00:11:04.982 --> 00:11:06.751
A lot of people say that I went to all of them self an article because it doesn't count.

00:11:06.751 --> 00:11:07.173
Why doesn't it count?

00:11:07.173 --> 00:11:15.000
There's seven continents and I've been to all of them and hugged at least one person's son on all of them, because that's how you know it counts.

00:11:15.000 --> 00:11:17.528
You were really there if you met somebody's son.

00:11:19.221 --> 00:11:19.923
Feel what I'm saying.

00:11:19.923 --> 00:11:23.552
I'm experiencing this thing we call life.

00:11:23.552 --> 00:11:26.142
I'm experiencing this thing we call life.

00:11:26.142 --> 00:11:30.086
Ford had me in Spain when I was 23 and I couldn't speak Spanish.

00:11:30.086 --> 00:11:32.969
That's how much life I'm trying to live.

00:11:33.769 --> 00:11:39.635
So when all of a sudden I'm in charge of my mama, I'm like what do you mean?

00:11:39.635 --> 00:11:43.182
I don't know how to be in charge of nothing.

00:11:43.182 --> 00:11:45.607
This shit is hard and I don't want to do it.

00:11:45.607 --> 00:11:47.072
I need y'all to understand.

00:11:47.072 --> 00:11:51.206
I don't want to be a caregiver.

00:11:51.206 --> 00:12:02.214
No, I don't want to do it.

00:12:02.214 --> 00:12:08.916
I don't want my mama to need me to do it.

00:12:08.916 --> 00:12:13.519
Put that in your pipe and smoke it.

00:12:13.519 --> 00:12:20.740
I don't want her to have the disease that requires her to need me to do it.

00:12:20.740 --> 00:12:29.826
Do you know how many of my family members or of my friends or the guys I've dated mama the same age or younger and they just the damn fine.

00:12:29.846 --> 00:12:50.716
I just feel like it's a smack in my face every time I see somebody around my mama's age just driving a car all over the internet taking pictures going to their family reunion, class reunion, and my mama doesn't even realize what month it is or what year it is.

00:12:50.716 --> 00:12:52.842
It pisses me off.

00:12:52.842 --> 00:12:59.054
Why, why, why.

00:12:59.054 --> 00:13:03.586
Now I'm not mad with her, I'm not mad with God.

00:13:03.586 --> 00:13:04.142
I don't even nobody even be mad with.

00:13:04.142 --> 00:13:05.744
I'm not mad with God, I don't even there's nobody to even be mad with.

00:13:05.744 --> 00:13:08.484
Who can I even point the finger at.

00:13:08.484 --> 00:13:10.828
You're stupid.

00:13:10.828 --> 00:13:11.850
It's a waste of time.

00:13:11.850 --> 00:13:13.333
It's a waste of time.

00:13:13.333 --> 00:13:19.913
But I need y'all to know because I get too many DMs and emails and otherwise things around.

00:13:19.913 --> 00:13:28.341
Oh, jake man, you find your calling, find my calling, my ass Don't.

00:13:28.381 --> 00:13:29.768
Nobody want to be a caregiver.

00:13:29.768 --> 00:13:32.748
It stinks, it sucks.

00:13:32.748 --> 00:13:38.273
Like I am watching my mama slowly erode and die every day.

00:13:38.273 --> 00:13:48.091
My daddy slumped dead on the sofa I'm laughing because I'm a comedian and I know he would love that sentence.

00:13:48.091 --> 00:13:51.283
Slumped on the sofa it's an alliteration Y'all got to give me that.

00:13:51.283 --> 00:13:51.785
That's funny.

00:13:54.821 --> 00:13:59.312
But my mama, I'm like watching her forget how to read.

00:13:59.312 --> 00:14:14.234
I'm watching her forget how to tie her shoe, forget how to brush her teeth, forget to spit out the stanky, slimy toothpaste water.

00:14:14.234 --> 00:14:31.154
If I, if I can get her to put the toothpaste on the toothbrush and then put the toothbrush in her mouth and then brush, you can forget actually spitting out the toothpaste.

00:14:31.154 --> 00:14:36.208
Oh, baby, she about to swallow that stuff and I'm watching all of this step by step.

00:14:36.208 --> 00:14:37.532
Who the hell wants to do that?

00:14:41.081 --> 00:14:50.975
But then I don't want to come on the podcast or on social media every day and be like, oh my God, it sucks again.

00:14:50.975 --> 00:14:56.267
There are enough people giving you a reason to be sad.

00:14:56.267 --> 00:15:02.101
Enough people giving you a reason to be sad.

00:15:02.101 --> 00:15:05.840
So what I share and what I talk about, it's not a lie.

00:15:05.840 --> 00:15:19.070
It's sections and sectors of the J Smiles caregiving journey that I feel haven't been shared already by someone else.

00:15:19.070 --> 00:15:21.855
But this sucks.

00:15:21.855 --> 00:15:26.623
It's very dark and I doubt a lot.

00:15:26.623 --> 00:15:27.604
I got to tell you.

00:15:36.196 --> 00:15:39.029
There are times when I think, damn, if Zetty didn't get Alzheimer's, what would she be doing?

00:15:39.029 --> 00:15:45.231
Forget about what I would be doing.

00:15:45.231 --> 00:15:46.113
What would she be doing?

00:15:46.113 --> 00:15:46.493
Y'all?

00:15:46.493 --> 00:15:47.234
My mama was nowhere near retiring.

00:15:47.234 --> 00:15:47.855
What would she be doing?

00:15:47.855 --> 00:15:49.557
I remember the trip she wanted to take.

00:15:49.557 --> 00:15:51.118
She wanted to go to the Holy Land.

00:15:51.118 --> 00:15:53.380
She loved bowling.

00:15:53.380 --> 00:15:54.422
She loved roulette.

00:15:54.422 --> 00:15:58.485
She would be in a ass about Black Lives Matter.

00:16:03.655 --> 00:16:04.822
Trump wouldn't stand a fucking chance.

00:16:04.822 --> 00:16:13.602
If my mama was alive, in her brain, I don't really know what she would do about it, but his ass would be in trouble, especially because she's a financial wizard, forensic, accountant.

00:16:13.602 --> 00:16:20.361
She would have scrubbed all his books and explained to him how come he didn't really have none of them billions and how it was all a lie and a farce.

00:16:20.361 --> 00:16:22.635
A deck of cards, house of cards.

00:16:22.635 --> 00:16:24.432
Whatever he was lying, he had none of that money.

00:16:24.432 --> 00:16:26.437
That's one thing.

00:16:26.437 --> 00:16:28.062
Maybe he would have never been 45.

00:16:31.291 --> 00:16:35.562
And then, hell yeah, I think about what would my life be.

00:16:35.562 --> 00:16:44.264
One thing is y'all I was never supposed to live full stop in the United States.

00:16:44.264 --> 00:16:54.964
I was always going to live between Africa, europe and the US, and now I legit have A permanent residence in Georgia.

00:16:54.964 --> 00:17:05.554
It's hilarious.

00:17:05.554 --> 00:17:08.436
For like eight years I had three addresses.

00:17:08.436 --> 00:17:15.165
Nobody even knew where to find me, and I wasn't running from the mob or the law.

00:17:15.165 --> 00:17:36.821
I literally just was moving around that much Cause I had those were my interests, were you know, but I don't doubt it like, oh, I hate my life, but it's like, damn, what if I did those product inventions that I thought of?

00:17:36.821 --> 00:17:45.223
What if I were, I was able to move to the country that I thought about?

00:17:45.223 --> 00:17:48.997
Maybe I would be married, I don't know.

00:17:48.997 --> 00:17:51.323
Maybe the man of my life was over there.

00:17:51.323 --> 00:17:54.921
I don't know, I don't know.

00:17:54.921 --> 00:18:07.182
Maybe I would sleep better at night Because I would never pick such a dry, sucky climate.

00:18:07.182 --> 00:18:12.538
I would be in a warm, temperate climate and all of my nostrils would feel better.

00:18:12.538 --> 00:18:16.204
Maybe I don't know.

00:18:18.830 --> 00:18:23.502
A man that I like a lot asked me to go half on a baby.

00:18:23.502 --> 00:18:38.097
He called me out of nowhere said Jay, you're the one, the one for what, the one for what and to do what.

00:18:38.097 --> 00:18:38.419
Honey.

00:18:38.419 --> 00:18:55.932
He was like I've been talking to my uncle, I really want a kid, and you've always been the one, you've always been that woman who and he rattled off a lot of very positive and flattering adjectives.

00:18:55.932 --> 00:19:03.320
I was like damn, now this man was divorced and had two children.

00:19:03.320 --> 00:19:09.354
He said but you measure up to me as the perfect woman.

00:19:09.354 --> 00:19:10.717
He gave me all the reasons.

00:19:10.717 --> 00:19:11.259
He thought so.

00:19:11.298 --> 00:19:12.321
Now, I ain't going to lie y'all.

00:19:12.321 --> 00:19:18.134
I was like ha well shit, why are you married to other girl If I'm the one?

00:19:18.134 --> 00:19:21.195
He said.

00:19:21.195 --> 00:19:24.278
But he said I didn't say that to him.

00:19:24.278 --> 00:19:25.339
I thought that.

00:19:25.339 --> 00:19:31.923
He said I'm older and wiser, I'm able to think things through more clearly.

00:19:31.923 --> 00:19:33.045
I said got.

00:19:33.045 --> 00:19:36.167
You said I'm going to come to Atlanta.

00:19:36.167 --> 00:19:39.971
I want to take you on a date.

00:19:39.971 --> 00:19:41.296
I want us to think through this.

00:19:41.296 --> 00:19:41.958
And I was like you know what?

00:19:41.958 --> 00:19:45.227
You're making some really good points, sir.

00:19:45.227 --> 00:19:50.681
He was like even if we don't get married, I would like to co-parent with you.

00:19:50.681 --> 00:19:53.511
I would love to have a child with you.

00:19:53.672 --> 00:20:02.138
I think being able to say my mother is Jay is like the dopest shit I could do, and I was like I ain't gonna lie y'all.

00:20:02.138 --> 00:20:05.842
I got a little you know what I mean.

00:20:05.842 --> 00:20:08.364
I got a little turned on in the conversation.

00:20:08.364 --> 00:20:12.166
I was like shit, you making me want to go out with myself.

00:20:12.166 --> 00:20:26.202
If you can read between the lines, it was a matter of weeks or months later when my mother had to have brain surgery.

00:20:26.202 --> 00:20:36.702
That brain surgery required all of my attention.

00:20:36.702 --> 00:20:44.298
She was in ICU, she had to learn how to walk, she had to learn how to talk, and that's when they told me she might have Alzheimer's.

00:20:44.298 --> 00:20:45.280
I was like what?

00:20:45.280 --> 00:20:55.392
So, of course, when it was time for this guy to call me back and he was like I hadn't been able to get you on the phone, I was texting you.

00:20:55.392 --> 00:21:02.912
I was like, oh honey, I forgot all about you and that baby, my mama's brain, got a hole in it.

00:21:02.912 --> 00:21:06.797
The hell.

00:21:11.501 --> 00:21:12.863
Caregiving is hard.

00:21:12.863 --> 00:21:16.227
It's not for everybody.

00:21:16.227 --> 00:21:20.053
I can't say it's for me.

00:21:20.053 --> 00:21:28.565
I do it, I put everything I have into it, but I can't say that it is for me.

00:21:28.565 --> 00:21:40.161
What I do know is that my mama is for me and currently what she needs is me to be her caregiver.

00:21:41.563 --> 00:21:47.138
But I got to let you know how much I didn't plan this and that I had a plan.

00:21:47.138 --> 00:21:51.558
You know I wasn't finding myself.

00:21:51.558 --> 00:21:54.338
You know some people are like you know what?

00:21:54.338 --> 00:22:01.616
I was kind of just doing a little this and a lot of that at a time and then my mama had a stroke and so I was able to go help my mama.

00:22:01.616 --> 00:22:03.614
That is not what the hell I was doing.

00:22:03.614 --> 00:22:12.515
No, no, it was a lot of stress.

00:22:12.515 --> 00:22:19.555
I made a bunch of bad decisions along the way for myself personally, me myself personally.

00:22:19.555 --> 00:22:35.145
That tickles the shit out of me to do that to me myself personally, and I have not always been a great caregiver for my mother or what others define as great.

00:22:35.145 --> 00:23:07.000
I made a whole bunch of mistakes along the way, a lot of scrapes and bruises, and I just got better Because I was committed to doing the best I could for my mom and overall, what I knew was if I die or if I end up in the hospital, then I can't give her care, and that's kind of what got me back in line.

00:23:09.730 --> 00:23:13.141
The hope and the happy came with humor.

00:23:13.141 --> 00:23:15.394
That's my story.

00:23:15.394 --> 00:23:18.077
The hope and the happy came with humor.

00:23:18.077 --> 00:23:25.503
The more I could laugh and joke about how stupid my life was turning out to be.

00:23:25.503 --> 00:23:35.151
The more happy I saw in Zeddy, the more happy I found in me and the more hope I had that life would be okay.

00:23:35.151 --> 00:23:40.721
Period, that's all I got, and you know what else.

00:23:40.721 --> 00:23:41.943
You know what else.

00:23:41.943 --> 00:23:46.665
Period, that's all I got, and you know what else.

00:23:46.665 --> 00:23:47.147
You know what else?

00:23:47.147 --> 00:23:53.619
Parented up family, psst, lean in on this.

00:23:53.619 --> 00:23:56.724
I stopped fucking planning Game changer.

00:23:56.724 --> 00:24:01.826
Yeah, I plan what I'm okay, I plan Zaddy's doctor's appointments.

00:24:01.826 --> 00:24:04.673
I plan okay, there's no gas in the car.

00:24:04.673 --> 00:24:06.251
I should probably put some gas in the car.

00:24:06.251 --> 00:24:12.977
Really short-term plans I plan with the team when we're going to put out the next podcast.

00:24:12.977 --> 00:24:15.375
I got a plan with that.

00:24:15.375 --> 00:24:20.558
Shout out to my girls yes, we are an all-female team.

00:24:20.558 --> 00:24:23.613
Boom, waste of production.

00:24:23.613 --> 00:24:24.595
Such an inside joke.

00:24:27.942 --> 00:24:37.540
But the long-term, intricate planning that I did before I let that go.

00:24:37.540 --> 00:24:42.770
It was causing more stress and getting in the way of my happy.

00:24:42.770 --> 00:24:50.406
So I had to let it go because there was way too much that I couldn't control.

00:24:50.406 --> 00:25:07.397
Before I was a caregiver, my responsibilities did not have so many tentacles, so I could say, okay, in three months and six months and nine months, okay, I got these plans.

00:25:07.397 --> 00:25:10.517
And then in one year and in three years, in five years I got these plans.

00:25:10.517 --> 00:25:20.550
Now I'm like, loosely in this year I want to accomplish this.

00:25:20.550 --> 00:25:26.343
But it's more like saying I want to eat.

00:25:26.343 --> 00:25:27.884
You know what I mean.

00:25:27.884 --> 00:25:32.691
Like if a person were to say do you want to eat or not?

00:25:32.691 --> 00:25:34.958
That's the way I plan now.

00:25:34.958 --> 00:25:43.662
Yeah, I want to eat this year I used to say I only want to eat lima beans, you know what I mean.

00:25:43.662 --> 00:25:46.854
Like I would get that kind of specific Hell with that.

00:25:46.854 --> 00:25:50.921
Like now I'm like, hey, you know what, if I eat this year, it's a good year.

00:25:50.921 --> 00:25:55.970
So I have broadened the constraints of how I plan.

00:25:59.736 --> 00:26:07.890
A main mantra for me is if Zeddy is alive and I'm not in jail, it's a good day.

00:26:07.890 --> 00:26:11.449
I haven't even been close to being in jail.

00:26:11.449 --> 00:26:14.560
People, all right Before you'd be like, oh shit, we got to figure out.

00:26:14.560 --> 00:26:16.365
What the hell did Jay do to almost get in jail?

00:26:16.365 --> 00:26:17.576
Or was she in jail before?

00:26:17.576 --> 00:26:23.576
No, when I did my own decision matrix around, what is the worst shit that could happen?

00:26:23.576 --> 00:26:26.279
Well, the worst thing would be Zed is dead.

00:26:26.279 --> 00:26:28.123
That's the worst thing on her end.

00:26:28.123 --> 00:26:38.599
And the worst thing on my end is if I'm in jail, then I can't get to her Right, I can't communicate with anybody to help.

00:26:38.599 --> 00:26:52.569
I could even be in the hospital and possibly still communicate and or manage her health, but if I'm in jail I can't control my career, her health, my nothing.

00:26:52.569 --> 00:26:58.126
So I was like OK, you know, if I keep this heifer alive and keep my black ass out of jail, boom.

00:27:03.836 --> 00:27:09.987
But old school Jay, I would have had 27 parameters of OK for a good day.

00:27:09.987 --> 00:27:11.869
I need eight hours of sleep.

00:27:11.869 --> 00:27:15.295
I need this much money in my checking account.

00:27:15.295 --> 00:27:17.603
I need to have gone on three dates.

00:27:17.603 --> 00:27:20.539
I need my hair to be tight.

00:27:20.539 --> 00:27:23.988
Oh bye, don't need all that.

00:27:23.988 --> 00:27:26.415
Chill with it, chill with it.

00:27:26.415 --> 00:27:28.277
So.

00:27:30.198 --> 00:27:37.623
Humor helped because I stopped taking myself, my plan and other people so seriously.

00:27:37.623 --> 00:27:40.044
So what if people don't call you back?

00:27:40.044 --> 00:27:41.766
Who cares?

00:27:41.766 --> 00:27:44.606
So what if that dude breaks up with you?

00:27:44.606 --> 00:27:45.748
Who cares?

00:27:45.748 --> 00:27:47.588
So what if you lose the job?

00:27:47.588 --> 00:27:52.211
Okay, now what they fired you, whatever.

00:27:52.211 --> 00:27:53.512
Now what?

00:27:53.512 --> 00:27:58.359
What you gonna do now?

00:27:58.359 --> 00:27:59.682
So what you got in a car accident?

00:27:59.682 --> 00:28:02.685
Okay, okay, didn't like it.

00:28:02.685 --> 00:28:12.948
It sucks If anybody had insurance, filed an insurance If they didn't, ok, but it's over, laugh that shit off.

00:28:12.948 --> 00:28:29.288
That's what came After all of the calamity and being a caregiver and I figured out how much of my plans just went poof and just disintegrated, like I was like, literally, I had all of these plans.

00:28:29.930 --> 00:28:40.384
My dad died on January 8th and it's like the very next day all of those plans went to shit just because he died, and like he had nothing to do with the plans.

00:28:40.384 --> 00:28:41.028
You understand?

00:28:41.028 --> 00:28:41.951
That's what's so crazy.

00:28:41.951 --> 00:28:46.161
It wasn't like I needed my dad to actually show up at any other meetings.

00:28:46.161 --> 00:28:49.306
He was not instrumental in any other plans.

00:28:49.306 --> 00:29:08.325
He wasn't a player in any of my projects, he wasn't helping invent nothing, he wasn't an investor in nothing, but with the domino effect.

00:29:08.944 --> 00:29:13.608
So I said, doing all that damn planning, you know what I'm planning to do.

00:29:13.608 --> 00:29:18.112
I'm going to plan to be as happy and as healthy as possible.

00:29:18.112 --> 00:29:23.744
Yes, I'm ills, and let everything else fall by the way.

00:29:23.744 --> 00:29:41.718
Lead by intuition, try to take care of my mom as best I can.

00:29:41.718 --> 00:29:42.239
Let it be, that's it.

00:29:42.239 --> 00:29:43.339
And I don't want to be a caregiver.

00:29:43.339 --> 00:29:44.020
So stop saying that shit.

00:29:44.020 --> 00:30:00.108
The snuggle ups Number one Acting is like the most unspoken superpower in the world of caregiving.

00:30:01.355 --> 00:30:03.143
Maybe you even want to consider improv.

00:30:03.143 --> 00:30:06.742
Obviously, I'm really good at it.

00:30:06.742 --> 00:30:21.406
Where is my Oscar or my Emmy or my Tony, because I have convinced a bunch of y'all that I like this, that I really am like this robotic.

00:30:21.406 --> 00:30:23.830
Ooh, I got it all figured out.

00:30:23.830 --> 00:30:25.297
I know what I'm doing all the time.

00:30:25.297 --> 00:30:27.260
I'm just hell.

00:30:27.260 --> 00:30:31.849
No, I don't even like being in hospitals.

00:30:31.849 --> 00:30:34.143
I don't like bodily fluid.

00:30:34.143 --> 00:30:34.736
Do you know?

00:30:34.736 --> 00:30:42.766
I've never seen a needle even go in my own skin Blood the thought of seeing blood makes me want to faint.

00:30:42.766 --> 00:31:05.943
So this is just about rallying the troops and digging in really, really hard and trying to get the job done for my mama, because when I tell you I am putting forth, shall we say, an EGOT effort.

00:31:05.943 --> 00:31:08.115
This is what it is.

00:31:16.104 --> 00:31:19.847
Number two Hitler had a plan.

00:31:19.847 --> 00:31:27.259
All plans aren't good and all plans shouldn't come to fruition.

00:31:27.259 --> 00:31:37.338
So that's also what I started telling myself to calm down and let go of the what ifs.

00:31:37.338 --> 00:31:48.381
How do I know that my beautifully crafted plans were even going to be good for me or the world?

00:31:48.381 --> 00:31:56.980
They may have caused me ultimately more distress and more harm than I could ever imagine.

00:31:56.980 --> 00:32:12.048
How the hell do I know being Zeddy's caregiver could be less stressful and have a healthier version of Jay than all my other plans?

00:32:12.048 --> 00:32:13.871
I don't know.

00:32:13.871 --> 00:32:16.963
I'm telling myself a story either way.

00:32:16.963 --> 00:32:29.528
So what the hell is the point of being worried about what didn't happen and living in la-la land and in a fantasy world.

00:32:29.528 --> 00:32:33.439
For what?

00:32:33.439 --> 00:32:34.060
No need in it.

00:32:34.060 --> 00:32:38.159
My grandfather would say, what need in that?

00:32:38.159 --> 00:32:40.986
It's not going to benefit me at all.

00:32:40.986 --> 00:32:48.515
And then I'm not present in this life, right here, right now.

00:32:48.515 --> 00:32:52.433
That's useless.

00:32:52.433 --> 00:32:55.682
That would be absolutely useless, or, as my therapist calls it, that would be ruminating.

00:32:55.682 --> 00:32:58.012
To sit here and say, but what if I?

00:32:58.012 --> 00:33:03.279
And then I would, and then I would, and I would all make belief.

00:33:03.279 --> 00:33:06.980
So I don't do that anymore anymore.

00:33:10.878 --> 00:33:17.923
Number three Everything you do, everything I do, is a choice.

00:33:17.923 --> 00:33:26.323
I fought that concept tooth and nail for so long.

00:33:26.323 --> 00:33:36.020
But Bernie Roth taught me eh, it's true, the concept is so true.

00:33:36.020 --> 00:33:42.585
He was one of my favorite professors in grad school at Stanford University in Palo Alto, california.

00:33:42.585 --> 00:33:46.243
And everything that you do is a choice.

00:33:46.243 --> 00:33:49.384
Little choices, big choices.

00:33:49.384 --> 00:33:53.626
You don't even have to put good or bad on it, positive or negative, it's just a choice.

00:33:53.626 --> 00:33:54.288
Little choices, big choices.

00:33:54.288 --> 00:33:55.994
You don't even have to put good or bad on it, positive or negative, it's just a choice.

00:33:56.958 --> 00:34:00.434
I chose to become Zeddy's caregiver.

00:34:00.434 --> 00:34:26.697
Just because my mama needed brain surgery and had Alzheimer's did not mean that her daughter had to manage her care through rehabilitation Didn't mean I had to decide to live with her and become her full-time caregiver.

00:34:26.697 --> 00:34:27.938
That was my choice.

00:34:27.938 --> 00:34:34.909
So since I chose to do that, I'm gonna own it.

00:34:34.909 --> 00:34:44.969
I think it is totally hypocritical to be a caregiver and then be mad as hell at your LO.

00:34:44.969 --> 00:34:52.788
They didn't make you do it, because everything in this life is a choice.

00:34:52.788 --> 00:34:54.521
Shout out to Bernie Roth.

00:34:54.521 --> 00:34:57.103
My therapist says it too.

00:34:57.103 --> 00:35:00.746
However, bernie Roth already had me on the choice train way before her.

00:35:03.262 --> 00:35:07.135
It might be pissing you off too, but you're choosing to be married.

00:35:07.135 --> 00:35:09.119
You're choosing to live in.

00:35:09.119 --> 00:35:10.603
Whatever country you live in.

00:35:10.603 --> 00:35:15.121
You're living in Okay, real controversial.

00:35:15.121 --> 00:35:17.382
You're choosing to stay alive.

00:35:17.382 --> 00:35:19.958
It's your choice.

00:35:19.958 --> 00:35:31.416
If you stay alive today, if you go to work tomorrow, if you go back home tonight, you could just decide to not go back home to your family and they could never hear from you again.

00:35:31.416 --> 00:35:36.768
What they gonna do your kids, your job, your church.

00:35:36.768 --> 00:35:44.240
If you just decided to never answer your cell phone and change your name, what can they do?

00:35:44.240 --> 00:35:49.748
Nothing at all.

00:35:49.748 --> 00:35:52.451
Oh, they're going to get mad and sad and cry.

00:35:52.451 --> 00:36:02.606
Okay, and it's a choice that you would have to live with the consequence of hurt feelings by others.

00:36:02.606 --> 00:36:04.815
All right, whatever.

00:36:05.797 --> 00:36:25.800
So, anywho, I chose to be Zeddy's caregiver and then I chose to care for her in a way that means I'm ten toes down in her face every day, every freaking day.

00:36:25.800 --> 00:36:29.465
I'm the caregiver in her face.

00:36:29.465 --> 00:36:31.661
That was also my choice.

00:36:31.661 --> 00:36:39.844
So I'm the reason why all of my other life pursuits were truncated.

00:36:39.844 --> 00:36:44.646
It's not my mama's fault, it's nobody's fault.

00:36:44.646 --> 00:36:45.838
I chose it.

00:36:47.161 --> 00:37:07.300
So here I am, totally present, because what would suck is to live half my life present and with my mama and half my life wondering about what would have happened if I lived in Africa and if I lived in Europe and if I had made that thing.

00:37:07.300 --> 00:37:20.400
That's how you end up nutso and not good at anything, feeling empty and sad inside.

00:37:20.400 --> 00:37:22.869
I don't like that.

00:37:22.869 --> 00:37:23.632
How do I know?

00:37:23.632 --> 00:37:28.965
Because I've gone through those kind of periods in life where you're not committed to shit.

00:37:28.965 --> 00:37:33.244
You're half here and half there, and a quarter over here and a quarter over there.

00:37:33.244 --> 00:37:34.367
Now, that would be hard.

00:37:34.367 --> 00:37:40.137
You can't be two halves and two quarters, because that means you're 150% somewhere For my math.

00:37:40.137 --> 00:37:42.460
People shout out I know I did the math wrong.

00:37:42.460 --> 00:37:43.043
Love y'all.

00:37:43.043 --> 00:37:46.181
You get my point.

00:37:46.181 --> 00:37:49.509
Yo, what's up y'all?

00:37:49.554 --> 00:37:59.027
I'm over here just mixing and scratching up stuff and reminding y'all Patreon is open.

00:37:59.027 --> 00:38:05.148
It is open and ready for you, you, you, you and your mama too.

00:38:05.148 --> 00:38:15.467
We are loading up things, all things Zeddy, all things podcast, all things caregiving behind the scenes, extra stuff.

00:38:15.467 --> 00:38:23.668
J Smile's comedy is dropping with her own little collection within the J Smile Studio Patreon.

00:38:23.668 --> 00:38:29.581
Very, very soon It'll be less than a month If you want to go on and get in there, because there's exclusives.

00:38:29.581 --> 00:38:33.449
That's kind of time sensitive to whoever is in there first.

00:38:33.449 --> 00:38:45.902
We've already had live broadcasts with people who are already in and I'll be honest, because of, you know, branding matters.

00:38:45.902 --> 00:38:58.983
So there's some stuff that I just can't say and do on the worldwide web that I can do in the Patreon pantry.

00:38:58.983 --> 00:39:12.449
So if you want to see and know and hear and experience more of what's happening between my ears, come to the J Smile Studio, my Patreon pantry.

00:39:12.449 --> 00:39:14.641
Hey, parenting Up family.

00:39:15.855 --> 00:39:25.148
This episode I'm giving it in honor to Inga Esperanza Dyer.

00:39:25.148 --> 00:39:27.943
She died recently.

00:39:27.943 --> 00:39:30.603
She's very, very special to me.

00:39:30.603 --> 00:39:34.922
She is a member of Delta, sigma, theta Sorority Incorporated.

00:39:34.922 --> 00:39:36.226
She's my back.

00:39:36.226 --> 00:39:45.248
I'm number five, she's number six, we are Autorus 37, spring 1991, howard University.

00:39:45.248 --> 00:39:48.679
When it comes to being a caregiver.

00:39:48.679 --> 00:39:57.130
She's a part of the village that I cared for and will always care for all of my life.